Subject of film Lorenzo’s Oil dies at 30

WASHINGTON — The man whose parents’ battle to save him from a nerve disease was told in the movie “Lorenzo’s Oil” died Friday at his home in Virginia, having lived more than 20 years longer than doctors had predicted.

WASHINGTON — The man whose parents’ battle to save him from a nerve disease was told in the movie “Lorenzo’s Oil” died Friday at his home in Virginia, having lived more than 20 years longer than doctors had predicted.

Lorenzo Odone, who doctors had predicted would die in childhood, died one day after his 30th birthday, said his father, Augusto Odone.

Lorenzo Odone had come down with aspiration pneumonia recently after getting food stuck in his lungs, his father said. He began bleeding heavily, and before an ambulance reached their home his son was dead, Odone said.

“He could not see or communicate, but he was still with us,” Odone said Friday. “He did not suffer. … That’s the important thing.”

Odone was found at age 6 to have adrenoleukodystrophy, or ALD. His doctors told his parents the disease — caused by a genetic mutation that causes the neurological system to break down — would lead to death in two years.

The disease leads to the accumulation of substances called very long chain fatty acids in cells, which causes irreversible damage to the material that coats nerve fibers in the brain.

Susan Sarandon and Nick Nolte starred as Michaela and Augusto Odone in 1992’s “Lorenzo’s Oil,” which recounted their efforts to formulate the oil they said helped their son fight the neurological disease, despite lacking scientific backgrounds.

A study published in 2005, based on research with 84 boys, showed that a treatment made from olive and rapeseed oils — patented by Augusto Odone — can prevent onset of the disease’s symptoms for most boys who receive an ALD diagnosis.

Odone plans to take his son’s ashes to New York to mix them with those of his wife, who died in 2000. Then, Odone said, he will sell his home in Fairfax, Va., and move back to his native Italy.

Odone also plans to write a book memorializing his son, “to tell the story of Lorenzo as a way to make him live on.”

Just Posted

Climate change’s impact on outdoor hockey discussed in Red Deer

Red Deer River Watershed Alliance held a forum Friday at the Alberta Sports Hall of Fame

Collision between Red Deer transit bus and truck investigated by RCMP

No one on bus was hurt, truck driver had minor injuries

Eckville man facing about 80 child sexual exploitation charges in court

More than half a million photos and videos found on electronic devices

Good-bye ice and snow, hello potholes on Red Deer roads

City workers will be spending 20 hours a day on various road repairs

Red Deer woman wins $1 million in lottery

A Red Deer woman spent $5 on a lottery ticket and became… Continue reading

WATCH: Fashion show highlights Cree designers

The fashion show was part of a Samson Cree Nation conference on MMIW

Puddle splashing: A rite of spring

Is there anything more fun than driving through water-filled potholes in the… Continue reading

Special evaluations can help seniors cope with cancer care

Before she could start breast cancer treatment, Nancy Simpson had to walk… Continue reading

Home renovator Mike Holmes oversees reno for paralyzed Humboldt Broncos player

AIRDRIE, Alta. — One of Canada’s most recognizable home renovators has acted… Continue reading

The endless war against invasive species

Group looks to protect native ecological environments in Alberta

WATCH: Fashion show highlights Cree designers

The fashion show was part of a Samson Cree Nation conference on MMIW

Flyers, Blackhawks, Sabres and Lightning to Europe in ‘19-20

Jakub Voracek was psyched at the mere suggestion the Philadelphia Flyers might… Continue reading

Danish receiver Nielsen looking to defy the odds again, this time at CFL combine

TORONTO — He’s coming to the CFL’s national combine as a definite… Continue reading

Mom with kids on YouTube channel suspected of child abuse

MARICOPA, Ariz. — A woman who operated a popular YouTube channel featuring… Continue reading

Most Read