Subject of film Lorenzo’s Oil dies at 30

WASHINGTON — The man whose parents’ battle to save him from a nerve disease was told in the movie “Lorenzo’s Oil” died Friday at his home in Virginia, having lived more than 20 years longer than doctors had predicted.

WASHINGTON — The man whose parents’ battle to save him from a nerve disease was told in the movie “Lorenzo’s Oil” died Friday at his home in Virginia, having lived more than 20 years longer than doctors had predicted.

Lorenzo Odone, who doctors had predicted would die in childhood, died one day after his 30th birthday, said his father, Augusto Odone.

Lorenzo Odone had come down with aspiration pneumonia recently after getting food stuck in his lungs, his father said. He began bleeding heavily, and before an ambulance reached their home his son was dead, Odone said.

“He could not see or communicate, but he was still with us,” Odone said Friday. “He did not suffer. … That’s the important thing.”

Odone was found at age 6 to have adrenoleukodystrophy, or ALD. His doctors told his parents the disease — caused by a genetic mutation that causes the neurological system to break down — would lead to death in two years.

The disease leads to the accumulation of substances called very long chain fatty acids in cells, which causes irreversible damage to the material that coats nerve fibers in the brain.

Susan Sarandon and Nick Nolte starred as Michaela and Augusto Odone in 1992’s “Lorenzo’s Oil,” which recounted their efforts to formulate the oil they said helped their son fight the neurological disease, despite lacking scientific backgrounds.

A study published in 2005, based on research with 84 boys, showed that a treatment made from olive and rapeseed oils — patented by Augusto Odone — can prevent onset of the disease’s symptoms for most boys who receive an ALD diagnosis.

Odone plans to take his son’s ashes to New York to mix them with those of his wife, who died in 2000. Then, Odone said, he will sell his home in Fairfax, Va., and move back to his native Italy.

Odone also plans to write a book memorializing his son, “to tell the story of Lorenzo as a way to make him live on.”

Just Posted

Victim in 2015 murder stabbed a dozen times

Daniel Boyd Sawyer on trial for second-degree murder

North Pole Stroll returns with Red Deer Lights the Night, Late Night Shopping

Red Deer’s Lights the Night and late night shopping events are back… Continue reading

WATCH: Red Deer’s Canyon Ski Resort is ready for the 2019 Canada Winter Games

The upgrades prepare the resort to host free-style skiing and snowboarding events

Red Deer man patrols streets at night after his truck was stolen twice in 3 months

‘I stay up every single night, they drive around, they test every car door…’

Lowry has strong words for Raptors’ lack of communication after loss

TORONTO — Raptors coach Nick Nurse might not have had a good… Continue reading

S. Korea’s ‘Garlic Girls’ accuse coaches of derailing team

SEOUL, Korea, Republic Of — The Garlic Girls, South Korea’s hugely popular… Continue reading

Trump administration defends its case against CNN’s Acosta

WASHINGTON — President Donald Trump’s administration is trying to fend off a… Continue reading

Long hidden, Marie Antoinette’s jewels go up for auction

GENEVA — Diamond and pearl earrings, pearl necklaces, a giant pearl pendant… Continue reading

A No-Go: Athletes and officials weigh in after Calgary votes ‘no’ to 2026 bid

TORONTO — Rotating Olympic hosts? A single go-to destination every four years?… Continue reading

Predators may have NHL’s best goalie combo on, off ice

NASHVILLE — Pekka Rinne is off to an even better start than… Continue reading

Canadian Premier League buys Ontario’s League 1, looks to develop talent there

TORONTO — The Canadian Premier League has bought Ontario’s League 1 and… Continue reading

Most Read