A fundraiser has been started to get Mason Seward a track wheelchair, allowing the toddler with a degenerative disorder to explore the outdoors. (Contributed photo).

Red Deer toddler with ‘the biggest heart’ needs special wheelchair

Mason Seward’s parents want their boy to get the most out of life

A Red Deer boy who was not expected to see his second birthday has exceeded medical expectations and is now a curious three-year-old.

But he’s frustrated when his manual wheelchair can’t take him where he wants to go.

His family is fundraising to get little Mason Seward an off-road standing wheelchair that will allow the tyke with a genetic neuromuscular disorder more freedom of movement.

So far, the community has contributed $7,900 toward the wheelchair’s $32,000 cost.

“He cannot wait to plow the driveway this year,” say his parents, Madison and Blake Seward.

Their son was diagnosed at three months old with Spinal Muscular Atrophy Type 1, a degenerative disorder that affects nerve cells that control his voluntary muscles.

“We were broken. Looking into the eyes of our baby and watching him deteriorate day by day was the hardest thing we have ever done,” said the Sewards.

Mason’s doctors told his parents he would likely not make it past age two, but the boy has been a part of a trial to receive a therapy treatment. The medication Zolgensma is now FDA approved, and the Sewards believe it has extended Mason’s life.

“We hope to give him the world. He has the biggest heart and has taught us about appreciation for life.”

While Mason loves the outdoors, he can’t get around because of muscle weakness.

He doesn’t have the upper body strength to manoeuvre a manual wheelchair off the pavement, “and the places he wants to go are not accessible,” say his parents, who want to give their son the most out of life.

A track chair would allow him to move over all types of terrain.

“It would allow him to experience all the joys of being a kid — fishing, camping, hiking, going to the beach, or playing at the park. His lack of mobility is a constant frustration.”

For more information about Mason’s fundraiser, visit GoFundMe.

red deer city

Get local stories you won't find anywhere else right to your inbox.
Sign up here

Just Posted

Red Deer RCMP say a 30-year-old man faces sexual charges against a teen. (File photo by Advocate staff)
Red Deer RCMP traffic stops lead to number of charges

Two different traffic stops conducted by Red Deer RCMP in September led… Continue reading

Boards for the neighbourhood outdoor rink near École Secondaire Lindsay Thurber Comprehensive High School and École Camille J Lerouge School are in place for the skating season. (Photo by SUSAN ZIELINSKI/Advocate staff)
Boards going up at outdoor neighbourhood rinks

City of Red Deer will alert public when rinks are ready to use

RCMP. (Black Press File Photo)
Calgary man dies in two-vehicle collision near Sylvan Lake

A semi truck collided with a SUV just east of Hwy. 781 on Hwy 11.

FILE - A Tim Hortons employee hands out coffee from a drive-through window to a customer in Mississauga, Ont., on March 17, 2020. THE CANADIAN PRESS/Nathan Denette
Tim Hortons to test deposit program for returnable coffee cups and packaging

Test program to start at select Toronto restaurants

Alberta Premier Jason Kenney arrives for an announcement at a news conference in Calgary, Alta., Tuesday, Sept. 15, 2020.	Kenney is isolating at home after one of his ministers tested positive for COVID-19. THE CANADIAN PRESS/Todd Korol
Alberta premier isolating after minister tests positive for COVID-19

Alberta Premier Jason Kenney is isolating at home

Cash and Cars lottery
Sylvan Lake woman wins major prize from Cash and Cars Lottery

Karin Plunkett of Sylvan Lake was a big winner in the annual… Continue reading

COVID-19. (Image courtesy CDC)
Temporary COVID-19 testing sites coming to Wetaskiwin and Ponoka

The Wetaskiwin location will open Oct. 23, 2020 and the Ponoka location will open Oct. 29.

ACC President and CEO Ken Kobly spoke to Ponoka Chamber of Commerce members over Zoom on Oct. 20. (Image: screenshot)
Alberta chambers are ‘411’ to members, government: ACC president

Changes to government supports, second wave and snap election

world affairs
British brinkmanship leaves little hope of a Brexit trade deal

The British pantomime is a traditional Christmas entertainment in which stock characters… Continue reading

Smartphone showing various applications to social media services and Google. (Pixabay photo)
National media calling for level playing field with Google, Facebook

In Canada, Google and Facebook control 80 per cent of all online advertising revenues

Red Deer city council will hold a public hearing on Oct. 28 about whether to take the future expansion of Molly Banister Drive off the table. (Photo by MAMTA LULLA/Advocate staff).
Opinion: Molly Banister extension isn’t as important as quality of life

Citizen opposition to the Molly Banister Drive extension has grown since the… Continue reading

Email letters to editor@interior-news.com
I ask myself: ‘What the hell’ has happened to Red Deer?

I moved to Red Deer on Nov. 1, 2001, and I fell… Continue reading

Most Read